Patient Resources List

Compiled by: K. Karington, HHCS Health Group of Cos.

We hope these resources prove helpful in obtaining the support you & your loved ones need to better navigate life with cystic fibrosis (CF) & other chronic illnesses. The programs are updated often, so please directly contact those you’re most interested in to get the latest information to benefit your specific needs.

MANUFACTURERS’ PATIENT ASSISTANCE PROGRAMS

Abbott Nutrition Patient Assistance Program Call 866-801-5657.

AbbVie Patient Assistance Foundation’s Medication Assistance Call 800-222-6885.

Allergan’s Live 2 Thrive Program (Zenpep or Ultresa) 

CHIESI CAREDIRECT® Program (Pertzye) (Bethkis) Call 1-888-865-1222.

CREON CFCareForward Program for eligible CF patients with E.P.I.: Call 855-CARE4WD. Enroll here.

CREON On Course Program for eligible non-CF patients with E.P.I.

Genentech’s (Pulmozyme) Access Solutions Program

Gilead’s (Cayston) Assistance Programs

Merck’s (Singular, Proventil) Assistance Programs

Novartis’s (Tobi Podhaler) Patient Assistance Program

The Oley Foundation’s Equipment/Supply Exchange (IV, enteral, tube-fed, nutrition)

PARI Respiratory Equipment Inc.’s Kitabis Pak $0 Co-Pay Program* (for co-packaged tobramycin inhalation solution                                                       & a PARI LC PLUS reusable nebulizer)  *Program is for eligible commercial insurance patients. 

Partnership for Prescription Assistance’s “Hotspot” of Resources:                                                                                                                                        This is a central location to help you find public & private assistance (medications & clinics).
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The A-Z List of Patient/Prescription Assistance Programs (from PhRMA member cos.) for thousands of chronic diseases.

Pfizer Rx Pathways’ Assistance Programs

Vertex’s (Kalydeco) Financial Assistance & CF Patient Support Program

Vertex’s (Orkambi) Guidance & Patient Support                                                                                                                                                                  Plus, here’s several of Vertex’s CF programs including awards & scholarships.

 

ADDITIONAL RESOURCES & ASSISTANCE

The Bob Wild Lung Transplant Assistance Program through the Bonnell Foundation

Boomer Esiason Foundation Transplant Grants & More 

C.F.R.I.’s list of Patient Assistance Programs & their National (CF) Counseling Support: Siri Vaeth Dunn 650-665-7565.

CUSTOMER REWARDS: Sign up for Cystic Fibrosis & Freedom Pharmacy’s Healthy Bucks Customer Rewards Program & start earning free,                 over-the-counter products today! Call Barbara at 407-848-7688 to get started.

The Cystic Dreams Fund’s Financial Assistance Grants

The Cystic Fibrosis Foundation’s Compass service provides insurance, financial & legal assistance. Call 1-844-COMPASS.

The Cystic Fibrosis Foundation’s Insurance Coverage Tips

The HealthWell Foundation Cystic Fibrosis Treatments Fund: Call 1-800-675-8416.                                                                                                       Plus, there’s assistance for other chronic or life-threatening diseases.

Medicaid: Florida Adult CF Medicaid Waiver: Make a referral at 1-800-342-0778.

Patient Advocate Foundation

Rx Assist’s Prescription Assistance Directory

S.S. Disability (CF applicant)

VITAMINS: Cystic Fibrosis & Freedom Pharmacies’ Multivitamin & Mineral Supplement Program is available to their pharmacy patients who receive a regular, monthly refill of digestive enzymes. Brand selection may include the MVW Nutritionals Complete Formulation® multivitamins or AquADEKS® chewable multivitamins. Call 1-800-741-4427.
                                                                              

CYSTIC FIBROSIS FOUNDATION 2017 IMPACT GRANT RECIPIENTS
Offer Personal Training to Voice Lessons

1. The Cystic Fibrosis Lifestyle Foundation’s Recreation Grant Program  Apply by March 31 or September 30.

2. The United States Adult CF Association’s newsletter

3.  Project CF Spouse

4. The sINgSPIRE Program is offered through Breathe Bravely.

5.  Empower Project, part of Attain Health, is an online health coaching & personal CF training program.

6.  Miles for Cystic Fibrosis supports Project BreatheStrong.

7.  Continuing Education for CF caregivers & patients  Email: cfparenteducationgroup@gmail.com

                                                                                                                       

SCHOLARSHIPS

The AbbVie CF Scholarship Program includes a Blogger’s Choice Award, Thriving Student Scholarships & more.

The Boomer Esiason Foundation’s CF Academic Scholarships

 Cystic Fibrosis Scholarship Foundation Scholarship: Jill M. Balboni Memorial (CF) Scholarship

The Jennifer Leigh Soper (CF) Scholarship 

The Peterson Scholarship offers one-time $1,000 – $10,000 scholarships for young adults.

Vertex’s All in for CF Scholarship  

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Again, Cystic Fibrosis & Freedom Pharmacies hope these resources prove helpful in obtaining the support you & your loved ones need to better navigate life with CF & other chronic illnesses. The programs are updated often, so please directly contact those you’re most interested in to get the latest information to benefit your specific needs.

For ADDITIONAL INFORMATION on CARE PLANS & other RESOURCES call 1-800-741-4427 & speak to our Benefits Team!                                                                                                                  iStock_000051732194_LargeVF