The concept of loneliness definitely does not bypass those of us whom have been impacted by chronic medical illness for our entire lives, such as with the diagnosis of cystic fibrosis. The previously mentioned research (in my last blog) certainly still applies.
While many of us learn how to adapt in much of the routine of treatment maintenance or even unexpected exacerbation, symptoms of depression and anxiety can actually be quite prevalent. This can be due to the longevity of the constant and unwanted medical symptoms.
We may also attach thoughts and emotions related to “feeling left out” or even “feeling like a burden” to our families and friends. It is here that we need to challenge these messages by making even more of an effort to stay connected. By reaching out to others for needed assistance, emotional support, suggestions for resources, or simply some friendly advice – we have opportunities to increase our own advocacy efforts which help to reduce the unwanted symptoms of depression and anxiety.
If you have cystic fibrosis, consider use of these RESOURCES to enhance your coping with C.F. needs:
www.CFLiving.com www.cfri.org www.CFF.org www.CysticFibrosis.com www.Cysticlife.org www.Esiason.org www.reachingoutfoundation.org www.HeroesOfHope.com www.BloomingRoseFoundation.org www.TipsForCFParents.com
Here is also a list of ONLINE SOCIAL NETWORKING GROUPS* for people and families impacted by chronic medical conditions, such as cystic fibrosis:
www.starbrightworld.org www.cysticfibrosisconnect.com www.dailystrength.org/support-groups www.cfteenchat.webs.com www.cfpenpals.blogspot.com www.cfmothers.com
*You may find many more online groups by searching FaceBook, BlogSpot (Blogger), or typing the words “online support group” into your search engine.
Summer Katz, M.A. NNC, LMHC
Licensed Mental Health Counselor
Cystic Fibrosis Pharmacy Patient Advocate
*Disclaimer: This blog is provided for informational purposes only (including brief topic exploration or reflection) and should not be used as a substitute for professional mental health or medical treatment.