Compiled by: K. Karington, HHCS Health Group of Cos.
We hope these resources prove helpful in obtaining the support you & your loved ones need to better navigate life with cystic fibrosis (CF) & other chronic illnesses. The programs are updated often, so please directly contact those you’re most interested in to get the latest information to benefit your specific needs.
MANUFACTURERS’ PATIENT ASSISTANCE PROGRAMS
Abbott Nutrition Patient Assistance Program Call 866-801-5657.
AbbVie Patient Assistance Foundation’s Medication Assistance Call 800-222-6885.
Allergan’s Live 2 Thrive Program (Zenpep or Ultresa)
CHIESI CAREDIRECT® Program (Pertzye) (Bethkis) Call 1-888-865-1222.
CREON CFCareForward Program for eligible CF patients with E.P.I.: Call 855-CARE4WD. Enroll here.
CREON On Course Program for eligible non-CF patients with E.P.I.
Genentech’s (Pulmozyme) Access Solutions Program
Gilead’s (Cayston) Assistance Programs
Merck’s (Singular, Proventil) Assistance Programs
Novartis’s (Tobi Podhaler) Patient Assistance Program
The Oley Foundation’s Equipment/Supply Exchange (IV, enteral, tube-fed, nutrition)
PARI Respiratory Equipment Inc.’s Kitabis Pak $0 Co-Pay Program* (for co-packaged tobramycin inhalation solution & a PARI LC PLUS reusable nebulizer) *Program is for eligible commercial insurance patients.
Partnership for Prescription Assistance’s “Hotspot” of Resources: This is a central location to help you find public & private assistance (medications & clinics).
& The A-Z List of Patient/Prescription Assistance Programs (from PhRMA member cos.) for thousands of chronic diseases.
Pfizer Rx Pathways’ Assistance Programs
Vertex’s (Kalydeco) Financial Assistance & CF Patient Support Program
Vertex’s (Orkambi) Guidance & Patient Support Plus, here’s several of Vertex’s CF programs including awards & scholarships.
ADDITIONAL RESOURCES & ASSISTANCE
The Bob Wild Lung Transplant Assistance Program through the Bonnell Foundation
Boomer Esiason Foundation Transplant Grants & More
The Breathe for Bea Foundation provides financial assistance, lung transplant aid, hospital care packages & scholarships for CF patients based on various foundation criteria. Applications, request forms and requirements are online.
C.F.R.I.’s list of Patient Assistance Programs & their National (CF) Counseling Support: Siri Vaeth Dunn 650-665-7565.
CUSTOMER REWARDS: Sign up for Cystic Fibrosis & Freedom Pharmacy’s Healthy Bucks Customer Rewards Program & start earning free, over-the-counter products today! Call Barbara at 407-848-7688 to get started.
The Cystic Dreams Fund’s Financial Assistance Grants
The Cystic Fibrosis Foundation’s Compass service provides insurance, financial & legal assistance. Call 1-844-COMPASS.
The Cystic Fibrosis Foundation’s Insurance Coverage Tips
The HealthWell Foundation Cystic Fibrosis Treatments Fund: Call 1-800-675-8416. Plus, there’s assistance for other chronic or life-threatening diseases.
Medicaid: Florida Adult CF Medicaid Waiver: Make a referral at 1-800-342-0778.
Rx Assist’s Prescription Assistance Directory
S.S. Disability (CF applicant)
VITAMINS: Cystic Fibrosis & Freedom Pharmacies’ Multivitamin & Mineral Supplement Program is available to their pharmacy patients who receive a regular, monthly refill of digestive enzymes. Brand selection may include the MVW Nutritionals Complete Formulation® multivitamins or AquADEKS® chewable multivitamins. Call 1-800-741-4427.
CYSTIC FIBROSIS FOUNDATION 2017 IMPACT GRANT RECIPIENTS
Offer Personal Training to Voice Lessons
1. The Cystic Fibrosis Lifestyle Foundation’s Recreation Grant Program Apply by March 31 or September 30.
2. The United States Adult CF Association’s newsletter
4. The sINgSPIRE Program is offered through Breathe Bravely.
5. Empower Project, part of Attain Health, is an online health coaching & personal CF training program.
6. Miles for Cystic Fibrosis supports Project BreatheStrong.
7. Continuing Education for CF caregivers & patients Email: cfparenteducationgroup@gmail.com
SCHOLARSHIPS
The AbbVie CF Scholarship Program includes a Blogger’s Choice Award, Thriving Student Scholarships & more.
The Breathe for Bea Foundation Education Scholarships (new in 2018)
The Boomer Esiason Foundation’s CF Academic Scholarships
Cystic Fibrosis Scholarship Foundation Scholarship: Jill M. Balboni Memorial (CF) Scholarship
The Jennifer Leigh Soper (CF) Scholarship
The Peterson Scholarship offers one-time $1,000 – $10,000 scholarships for young adults.
Vertex’s All in for CF Scholarship
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Again, Cystic Fibrosis & Freedom Pharmacies hope these resources prove helpful in obtaining the support you & your loved ones need to better navigate life with CF & other chronic illnesses. The programs are updated often, so please directly contact those you’re most interested in to get the latest information to benefit your specific needs.
For ADDITIONAL INFORMATION on CARE PLANS & other RESOURCES call 1-800-741-4427 & speak to our Benefits Team! 